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Twist Bioscience teams up with MedGenome to diagnose rare diseases
Medical Diagnostic | News | 0 Comment
To address the rare disease burden in India, Bengaluru-based MedG...Read more
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Effectively Addressing Growing Rare Diseases Burden
Text blogs | Features | 0 Comment
The Central Drugs Standard Control Organisation (CDSCO) stated recentl...Read more
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Addressing Rare Disease Treatments with Biosimilars and Orphan Drugs
Opinion | Views | By Surbhi Gupta, Industry Principal, Healthcare & Lifesciences, Frost & Sullivan | 0 Comment
Governments across the world have regulatory incentives to support orp...Read more
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Rare disease patients appeal to new Health Minister for urgent policy intervention
Policy & Regulatory | News | 0 Comment
With the third consecutive term win of the government, rare disease pa...Read more
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Opinion | Interviews | By Shivani Thakar | 4 Comment
What has it been like to raise awareness about rare diseases among pat...Read more
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ORDI to host ‘Racefor7’ to raise awareness on Rare Diseases in 15 cities on Feb 25
Healthcare | News | 0 Comment
The Organisation for Rare Diseases India (ORDI), a decade old non-prof...Read more
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Biotechnology | Features | 1 Comment
The scientific community has a critical role to play in accelerating r...Read more
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Call for increased awareness on Acid Sphingomyelinase Deficiency as rare disease
Digital Healthcare | News | 0 Comment
Patients diagnosed with Acid Sphingomyelinase Deficiency (...Read more
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Govt announces customs duty full exemption for all drugs used in rare diseases treatment
Policy & Regulatory | News | 0 Comment
The Central Government has given full exemption from basic custom...Read more
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AstraZeneca expands portfolio by bringing rare disease therapy for patients in India
Pharma | News | 0 Comment
AstraZeneca India has announced its entry into rare disease therapy in...Read more
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MedGenome Labs unveils FSHD1 genetic screening test for rare disease diagnosis
Medical Diagnostic | News | 0 Comment
Bengaluru-based MedGenome Labs has announced the launch of a ...Read more
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Rare Diseases Need Not Be Neglected Anymore
Digital Healthcare | Features | 0 Comment
The death of a 13-year-old Ghaziabad boy suffering from Hunter Syndrom...Read more
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Addressing ‘Orphaning’ of Rare Diseases
Opinion | Views | By Ravi Shet, Clinical Data Management Professional | 0 Comment
To tackle any disease requires sustained research and development (R&a...Read more
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Sanofi to bring new therapies of rare diseases to India
Pharma | News | 0 Comment
Sanofi Speciality Care has reaffirmed its commitment to rare diseases ...Read more
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Research centre for rare diseases opens in Bengaluru
Digital Healthcare | News | 0 Comment
The Karnataka government has launched a research and training unit for...Read more
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Challenges and strategies for rare diseases trials
Opinion | Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment
For most patients with rare diseases, finally receiving a diagnosis is...Read more
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Takeda, UNGCNI initiative strengthens access to rare disease treatment in India
Digital Healthcare | News | 0 Comment
In November 2021, Takeda Pharmaceutical together with United Nations G...Read more
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Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair
People | News | 0 Comment
Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more
