ORDI to host ‘Racefor7’ to raise awareness on Rare Diseases in 15 cities on Feb 25
Healthcare | News | 0 Comment
The Organisation for Rare Diseases India (ORDI), a decade old non-prof...Read more
Biotechnology | Features | 1 Comment
The scientific community has a critical role to play in accelerating r...Read more
Call for increased awareness on Acid Sphingomyelinase Deficiency as rare disease
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Patients diagnosed with Acid Sphingomyelinase Deficiency (...Read more
Govt announces customs duty full exemption for all drugs used in rare diseases treatment
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The Central Government has given full exemption from basic custom...Read more
AstraZeneca expands portfolio by bringing rare disease therapy for patients in India
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AstraZeneca India has announced its entry into rare disease therapy in...Read more
MedGenome Labs unveils FSHD1 genetic screening test for rare disease diagnosis
Medical Diagnostic | News | 0 Comment
Bengaluru-based MedGenome Labs has announced the launch of a ...Read more
Rare Diseases Need Not Be Neglected Anymore
Pharma | Features | 0 Comment
The death of a 13-year-old Ghaziabad boy suffering from Hunter Syndrom...Read more
Addressing ‘Orphaning’ of Rare Diseases
Opinion | Views | By Ravi Shet, Clinical Data Management Professional | 0 Comment
To tackle any disease requires sustained research and development (R&a...Read more
Sanofi to bring new therapies of rare diseases to India
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Sanofi Speciality Care has reaffirmed its commitment to rare diseases ...Read more
Research centre for rare diseases opens in Bengaluru
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The Karnataka government has launched a research and training unit for...Read more
Challenges and strategies for rare diseases trials
Opinion | Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment
For most patients with rare diseases, finally receiving a diagnosis is...Read more
Takeda, UNGCNI initiative strengthens access to rare disease treatment in India
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In November 2021, Takeda Pharmaceutical together with United Nations G...Read more
Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair
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Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more
ImpactGuru's crowdfunding campaign raises Rs 125 Cr for rare disease patients
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ImpactGuru.com, an integrated healthcare financing platform, has repor...Read more
Rare Disease India Foundation issues urgent demands for ensuring treatment
Digital Healthcare | News | 1 Comment
Rare Disease India Foundation (RDIF) a national patient advocacy group...Read more
ORDI's 7th Edition of Racefor7 to raise awareness on rare disease
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The Organization for Rare Diseases India (ORDI) has announced the seve...Read more
Takeda India introduces diagnostic programme for rare diseases
BioPharma | News | 0 Comment
Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...Read more
Rare Diseases Policy 2021 focuses on indigenous research for treatment
Policy & Regulatory | News | 1 Comment
Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...Read more